Two Days Out

I’m writing this on Easter, although it won’t post until tomorrow, and it’s so springlike here: totally over the top. Downtown, where I’m drinking iced tea, there are petals raining down from flowering trees. Even though it’s Easter, I’m keeping up my guilty Sunday pleasure, taking a few hours away to sit by myself and write. Joey has his evaluation on Wednesday, late in the morning. There’s so little that I can do to affect what will happen there that I am overpreparing in dumb ways, packing a diaper bag with things he really likes (fruit smoothie pouches, Harold and the Purple Crayon) and picking out a comfortable and nice-looking outfit. The only other time he’s been evaluated for anything was the speech evaluation, which involved a lot of shrieking and crying and Joey throwing himself to the floor. I’m told that this will work differently; I hope so. Kit will be staying with my dad, so at least it will just be Joey and me. I had a phone intake interview with the evaluation coordinator at the Regional Center (the institution that will be evaluating Joey), and it was very detailed in some ways (“How does Joey eat? Is he weaned? What does he drink out of?”)—I only really got upset when she asked me whether he has any repetitive behaviors, and she accepted my rambling “I don’t want to say hand flapping, because I know that’s a thing, but he certainly . . . waves his hands . . .  when he’s upset or excited” quietly. When the interview was over, she gave me the “You will be receiving services, surely” version of her introductory talk.

 

I told a friend about what’s happening: that we’re having Joey evaluated for the possibility of autism this week. She came for a playdate on Friday, bringing her two adorable little girls (one of whom is about to be three and the other of whom is five days older than Kit). She asked hesitantly whether this was because of vaccines, which I tried to quickly debunk (later, I posted an article on Facebook about the total lack of connection between autism and vaccines, and she “liked” it). She seemed surprised that anything might be wrong with Joey: sure, he doesn’t talk, but he seems like basically a happy kid—just an antisocial one who likes to run in circles and flip light switches. And he is super great; if you’ve never met him, you’ll just have to take my word for it, but he’s really a wonderful kid. I’m still adding signs every day to use with him, and so today I’ve been able to use Easter, bunny, egg, hide, and find. He’s still not completely interested, but I’m hoping that when we’re able to hook him up with some Signing Time, he’ll start using it with me. He does seem to appreciate some of the signs that I’ve been using for longer (open, gentle, alone, outside, cracker, cookie), and is more likely to act as though he has “heard” them than he is with my words alone.

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5 thoughts on “Two Days Out

  1. Signing Time is basically Mara’s favorite thing in the world. I hope it becomes a hit for Joey too! I don’t think any of us will be surprised to hear he’s wonderful and amazing. The two neighbor kids closest to us have various sorts of delays (mostly motor, in the younger boy’s case, but seeming autism spectrum-y in the older boy’s) and yet this hasn’t impacted the relationship and fun the girls have with them and vice versa.

    It makes me so happy that, whatever’s going on, Joey is surrounded by so much love and support.

  2. I wish we had raining flower petals here! I’m glad you are still taking time for yourself. And of course he is wonderful and amazing! I’ll be thinking of you this week.

  3. That is so cool that you’re using more and more signs with Joey. He is cute as a button…I’ll be thinking of you Weds. morning and sending up prayers.

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